Anticipating the arrival of a new life is an unparalleled journey filled with joy and wonder. Yet, alongside this exhilaration often comes a wave of uncertainty. Questions may arise: What challenges could lie ahead? How will the journey unfold? While it’s natural to wish for nothing but smooth sailing, being prepared for any eventuality can be a source of strength.
Such was the experience for a young couple eagerly awaiting their son, whom they planned to name Brody. During a routine ultrasound at 24 weeks, they encountered unexpected news that shifted their perspective. The doctor presented them with choices that would forever alter their path…
Sara Heller and her partner Chris received important news about their upcoming arrival, Brody. They learned that he would be born with a unique condition known as a bilateral cleft lip and palate. The healthcare professional explained that this condition might lead to some health challenges for him.
After sharing this information, the doctor gently inquired whether they intended to continue with the pregnancy.
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For Sara and Chris, the decision was clear. They were wholeheartedly committed to nurturing their little one, embracing any uniqueness he might possess. Their focus was on offering unwavering support, prepared to face any health challenges that could arise after his arrival.
Their mission focused on raising awareness about the various challenges newborns may face, particularly regarding physical differences.
“It’s Important To Celebrate Your Child, Regardless Of Their Journey,” Sara expressed, as noted by HeartEternal.
“We Aimed To Transform The Visual Narrative Surrounding Ultrasound And Newborn Photos On Social Media, Specifically Highlighting Cleft Lips And Palates.” While Brody’s condition required additional attention, as cleft lips and palates can complicate feeding, smiling, and even breathing, many children with these differences benefit from therapy to develop essential skills.
The exact causes of cleft lips and palates remain unclear, occurring when tissue fails to properly fuse during pregnancy. According to the Centers for Disease Control and Prevention, approximately 2,650 infants are born with a cleft palate annually in the U.S., while around 4,440 are born with a cleft lip, with or without a palate.
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Sara found herself inundated with messages about her baby’s appearance, and she saw this as an opportunity to raise awareness. Just days before New Year’s Eve, someone on Instagram inquired, “What’s going on with his face?”
Instead of engaging in a debate, she chose to respond thoughtfully. “I believe in teaching rather than arguing because I want Brody to carry that mindset into the future,” she explained. “My hope is that he becomes a voice for younger children with cleft conditions, empowering them when they might not yet have the words to speak for themselves.
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Sara has witnessed remarkable acts of kindness throughout her journey. One day, while dining, a stranger approached her, offering a folded note that revealed a generous gift of $1,000. Accompanying it was a heartfelt message, “for the beautiful baby.” This unexpected support helped Sara and Chris cover Brody’s medical costs for his lip repair surgery. Now, after his procedure last year, Brody is on the path to recovery, filled with joy despite needing a few more surgeries. This journey has illuminated the strength of the cleft community, with support pouring in from across the nation, offering prayers and encouragement.
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Sara, Chris, and their adorable little one, Brody, truly spark a sense of inspiration in me.